Devoted to health education, information and support for the person with the condition as well as their friends, families or the health professionals who treat them. Also known as Eagle-Barrett syndrome.

Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, treatment options, clinical trials, research, and public policy.

The DNA Learning Center`s multimedia guide to genetic disorders. Complete in depth articles about each disease listed.

Dedicated to providing parents with information about Down syndrome.

Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients.

Lay advocacy groups, support groups, information on genetic conditions and birth defects for professionals, educators and individuals. Disorders from A-Z.

Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.

A collection of medical essays and abstracts for parents.

A listing of organizations worldwide, support groups, and toy catalogs for children of special needs.

Links to online definitions, information sites, and support groups for genetic disorders and birth defects.

Information about this organization as well the disease itself. Offers news, events, a survey, a newsletter and further resources.

Features information about the disease, its teatment, and inheritance.

Resources and abstracts for parents and professionals on communication, early intervention, therapies, medicine, literacy, medical issues, mathematics, vitamins and other supplements.

Literature on XYY, Klinefelter, XXX, and Turner`s Syndrome.

A rare genetic condition (estimated to occur in 1/20,000 births) which causes medical and developmental problems.

In Chicago. Includes a bulletin board.

A support site for individuals and professionals dealing with Sturge-Weber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research.

Cystic fibrosis information and support, including a vibrant on-line community, via email, a Handbook of information and resources, photos of CFers, a CF Shop and bookstore.

Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.

Information about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data.

Based in the United Kingdom. Working to advance the development and education of individuals with Down syndrome